EURORDIS is a patient-driven, non-governmental alliance of patient organisations and people living with a rare disease, representing 989 rare disease patient organisations in 74 countries, covering over 4,000 rare diseases. EURORDIS is the voice of 30 million people affected by rare diseases throughout Europe.
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Darlene Sivret My son died in July of a rare disease at the age of 24. 🙏🏻
Jennifer Nash Dale Hillers Bob Logan
