Develop research on rare and orphan diseases worldwide
Rare diseases affect 6% to 8% of the world population and approximately 500,000 people in Switzerland. The majority of these conditions affect children and in three out of four cases have a fatal outcome. The quest for specific drugs is a priority, especially as the effectiveness of certain rare disease drugs has been demonstrated in the treatment of most common diseases. The BLACKSWAN Foundation was established in Switzerland in 2010 to contribute to the development of research on rare and orphan diseases worldwide. The Foundation supports research on all different types of rare and orphan disease, which makes its vision unique and helps in finding new solutions that can assist a large variety of projects. Besides its funding research mission, the Foundation organizes every two years the RE(ACT) Congress , which became an international reference point for rare disease experts. In five editions, more than 1,500 scientists were able to establish approximately fifty collaborations. Since 2015, BLACKSWAN Foundation has also started an international advocacy and awareness campaign called #RAREvolution to ensure rare diseases are recognized as an international public health and research priority. Learn more about the BLACKSWAN Foundation at https://www.blackswanfoundation.ch/en/
Alternative ways to give to BLACKSWAN Foundation:
For gifts by check: Write your check to KBFUS, write " BLACKSWAN " in the memo section of the check, and send it to KBFUS, 551 Fifth Avenue, Suite 2400, New York, NY 10176. Gifts by wire transfer or to contribute other types of property: Email KBFUS at: info@kbfus.org or phone (212) 713 7660.
Fundraisers
BLACKSWAN Foundation/FOXG1 Research
FOXG1 Research Group is dedicated to funding the world's leading scientists to understand and cure FOXG1 Syndrome, a severe neurological disorder affecting children. We are a special project group of the BLACKSWAN Foundation, which is dedicated to research for rare and orphan diseases. For processing donations in the United States, we have partnered with the King Baudouin Foundation US. FOXG1 is one of the first and most fundamental genes formed during brain development. Studies show that even a slight change in this gene causes other brain conditions like Autism. Most kids with a mutation in their FOXG1 gene can't walk, talk, eat without a feeding tube, or take care of their most basic needs; most suffer from life-threatening seizures. The good news is a cure is within our reach. Leading scientists are proposing research because FOXG1 holds the key to unlocking many brain disorders that affect millions of people including Autism, Schizophrenia, Alzheimer's and brain tumors. They also believe we can get to human clinical trials in two to five years. The potential to change millions of lives is tremendous. The time is now. Join us to pioneer some of the most ground-breaking research in human history. Your donation will directly be used for scientific experiments. We cannot find a cure without your donation. For more details please see our website: http://foxg1research.org . How can you help? For gifts by check: Write your check to KBFUS, write "BLACKSWAN FOXG1 " in the memo section of the check, and send it to KBFUS, 551 Fifth Avenue, Suite 2400, New York, NY 10176. Gifts by wire transfer or to contribute other types of property: Email KBFUS at: info@kbfus.org or phone (212) 713 7660.
- Raised
- $51,105
- Goal
- $1,000,000
Lucy's 10th Birthday Fundraiser
I am raising money for FOXG1 Research because my cousin has FOXG1 Syndrome and I really want her to get better. Love, Lucy
- Raised
- $850
- Goal
- $1,000
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