The Ehlers-Danlos Society
We strive to give hope to all those who are affected by Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders.
Our Mission
The Ehlers-Danlos Society is a global organization dedicated to advancing and accelerating research and education in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). We support the development of effective and equitable EDS and HSD therapies and work collaboratively to improve the lives of individuals affected by EDS and HSD.
Our Vision
To create a world in which each person living with the Ehlers-Danlos syndromes and hypermobility spectrum disorders has the right treatment and care at the right time for their specific needs.
Our Programs
Many around the world face a diagnostic odyssey: years, sometimes lifetimes, fighting for recognition, diagnosis, and care. The Ehlers-Danlos Society is working towards a time when geography and wealth no longer determine your quality of life.
At The Ehlers-Danlos Society, we CARE – We are driving forward Care, Access, Research, and Education, and are committed to changing the lives of people impacted by EDS and HSD.
Donors
Magali Huertas Judith Miller