Rare diseases claim the lives of most children and teens. While most people wait for a cure they have nowhere to turn. We offer a community group support system that can help you deal with so many emotions, questions, and uncertainty. We realize that connecting with other families is essential to this journey. We will provide you with group meetings and counseling so that you can connect with others who are struggling like you.
To find out more information on how you can get help today, please visit us at www.projectsebastian.org and send us a quick message!
Fundraisers
Rare Warrior Run
Join us on Saturday, June 1st, for the Rare Warrior 24 Run, supporting all rare diseases! This will be our third year hosted in Santa Clarita, California. We are super excited to be back and have added more fun features for your race day experience. First, The all abilities 1/2k. This is for all disabled people, whether you are a child or an adult, have crutches or wheels, or need assistance because you are blind. This is the race for you. Second up the 5K, and add a more extended version of last year's five miler, the 10K. Yep, there are three races for you to participate in to support the rare disease community. This year, we have a timing company for serious runners! Expo area for everyone to mingle and connect! Bagels and coffee!! All proceeds go to benefit Project Sebastian to further our mission of helping all rare disease families through support groups, rare education, psychotherapy, and addiction support systems. To register for the race, please visit this website: https://runsignup.com/Race/CA/Valencia/RareWarrior24
- Raised
- $0
- Goal
- $30,000